

''If I could save time in a bottle, The first thing that I'd like to do, Is to save everyday,
Till
Eternity passes away, Just to spend them with you...''
('Time In a Bottle' - Jim Croce, 1973)
A year ago, during this time, we were starting the final watch for DJ; in the previous two months she had slowed considerably, the disease was finally showing it's full effects. It was just a little under four years previous, that we had learned she was a victim of a terminal disease. At that time we had went to the Emergency room for what we thought was a simple, but prolonged shoulder pain. Then, it was suspected that there was something a lot more serious going on, and over the next 48 hours that suspicion was confirmed: Colon cancer, which had metastasized to the liver. We were told then, 4-6 years, with the doctor saying at that time, ''...if we make it to four years, I would consider that great...''. Of course we were devastated...we listened as the doctor continued in her quiet steady tone, describing things we never actually heard, not that day...they would have to be repeated to us later, later after we had went through that time of experiencing together at first, the sheer terror of just what this really meant; our time together, after 45+ years, would be coming to an end. A day or two later, after being told of the results of the most recent tests, and having been given the prognosis, we walked out of the medical building...stunned, we were in a state of pure shock and disbelief. Sitting in the car, we hugged each other and cried together for quite some time...those tears were the raw physical expression of the deep sense of terror and helplessness we both felt; they, being the only recourse to learning of such painful news.
As I recall those first mind numbing and foggy days, I am struck that we did not disintegrate completely. As I drove back to our house, barely seeing through tears and the rain, my mind was racing; Damn!, we had just been told DJ was going to die...and we knew just about when it would happen!! I will not attempt to describe the sense of immediate panic which invaded and overtook my mind, I am not versed well enough to convey the true feelings that assaulted my mental framework, saying it was complete is the best I can offer. I mean we generally understood that we all die, but this...this is not what we had expected...I don't know what we expected...but this is what we had. As I drove the familiar route back to our house, I looked around, at the passing cars, the people, the buildings...especially the buildings and other inanimate things, I thought about how most of those things would still be there when DJ was gone...I made a mental note of the broken corner of the large lighted bulb and Neon sign which stood in the parking lot of the drug store near our house; over the next four years I would take special note of that broken corner as I would have need to be in and out of that parking lot often during that time.
Later that day, as we sat on the couch in our living room, holding one another and both of us crying inconsolably, attempting to reassure each other that somehow, we would make it through this together, my mind continued to be bombarded with all manner of wild and up until then, unimaginable thoughts. There was a meeting scheduled with the doctor two days hence, when a course of treatment would be prescribed, but now with the fresh rawness of the situation stinging in our brains, it was just she and I, crying, trying to speak, only half making sense with anything we said. We sat on that couch like that for the rest of the afternoon, eventually falling to sleep...waking only when the early winter shadows crept across the room, changing the light patterns on our faces...
In taking this time, now, to review this past year and all that has happened, I am attempting to acknowledge, along with many of the other firsts which have occurred, a lot of the new things that me and my family have had to come to terms with in the absence of DJ, as well as some of the effects that absence has produced. My thoughts about the entire episode has varied from the shock and anguish of those first early days of knowing to the minutes and seconds I finally counted as DJ took her last breaths, to the more recent thoughts of realizing that I was becoming comfortable with the fact that she is no longer here. In recalling those first few days after we were told, I can remember how we sat and talked about what she wanted to happen, about how her main concerns were our children and me, and not being in pain. DJ expressed some dismay over her car, the house, and seemingly small and probably to some, insignificant things. In my mind the only real concern I had was how to make that time which was left, truly the best years of her life, as far as humanly possible. We are of modest means, but I was determined to try and do whatever was humanly possible to make each day a smile-day for her, I hope I succeeded.
October first is DJ's birthday, but I have decided that this day, this year cannot have any more hurt, no more pain than it did last year as I watched her, as she sat in a wheelchair, trying to enjoy the family and friends whom had gathered to celebrate her special day, but she was failing fast. It has to be this way for me; each day since the last one she was last on this earth, has held it's own particular hell for me, and to ascribe that any single day, as being more painful than another, would seem to me to be improper, they all hurt; some different than others, but all of them, causing that damn pain...a couple of weeks later, Thanksgiving dinner was held at our house as it always has been, tho it was held early, with our two daughters and son doing most of the cooking; our Christmas tree had also been put up. The regular compliment of extended family members were present, all doing their best to maintain an air of normalcy in that very unnatural situation, even down to hiding portions of one of the desserts to insure that seconds might be enjoyed later; there always seem to be one favorite of which there never is enough of and this was an old pasttime at our family dinners. It was a fine meal and for the most part we ate and talked, and laughed, and made fun of one another as we always did at this time. DJ, also, in that wheelchair, ate her fill and chimed in on the banter. Later during the meal, as everyone was enjoying dessert, I sat on the couch in the living room looking into the dining room at DJ as she sat at the far end of the table talking to one family member, then another; she looked sick...it was one of the few times I had been able to really acknowledge that. For most of the previous four years she had maintained her weight, looked full and vivacious and I knew we had been fortunate in that we had been able to do a lot of the things we wanted to.
Oh, this year, the beginning of summer, our special time, did bring me a few weepy days at it's onset, days when tears actually flowed, but this was not because of any increase in the pain or sadness I felt, it was more of me allowing the expression of those constant companions to be loosed in more familiar ways, me, learning to let the tears flow. None of the days commonly designated as special, last Christmas, New Year's, Valentine's Day, not one of them made me feel any worse than I already did at those points in time. Thus, my birthday in May, our children's birthdays during the months of September and October, our Wedding Anniversary in that same October month, cannot provide any more hurt than did the day she died; for me it is just that simple...and complex... These days will come again and if I'm alive, I will endure and survive their passage with the hope that the pain of them, will have lessened, but I thoroughly understand, there will be some pain. I have read and heard about the powerful emotions which can be evoked at these times, how the days leading up to some of those special days can place us back on that roller coaster even quicker than the actual day. In recognizing what I could not control about this entire process, I also understood something about some of the things I could control...I also understand that the actual work of exercising that control about those things which I can affect, is really left up to me; so I've chosen to try and not let my memories of our special days together force me back into the area of deeper pain and sorrow, the simple fact that DJ is not here with me now, each and every day is pain enough and will last me my lifetime; it is not like the memory of her I have right this second will be any more or less painful when I have it on her birthday, our children's birthdays, or the anniversary of the date we were first married. I won't expose myself to that possibility. The point of this entire exercise, this 'active grieving' as I embarked upon it, was to find out how to keep the memories of DJ and let go of so much of the pain; to a large extent I have been able to do that. I have found a level of tolerance which allows me to remember and not eye the beckoning of that open window with desire. At one point in my life I may have been looking for many things at the bottom of a bottle, but it never occurred to me that I might ever want to place a portion of time in one, and never, never open it.
So, at the one year mark of DJ's passing, life is still moving forward, during that time, life for me and the family has truly been a roller coaster; for me, from facing the challenges offered by open windows and inviting ledges to realizing the good fortune I have had, despite the loss of DJ. For sure, for a while I felt as if I was suspended, floating, being carried along to where, I knew not, filled with pain, sorrow and doubts on an order of magnitude I would not have believed existed; days and nights of stark realizations and moments of serious self doubt have vied with my need to find a way to live this different life with hope. Having forced myself to deal with almost every memory of our life together that I can recall, DJ is still, constantly with me and I have managed to find a way to carry her in my heart without the weight of the pain of missing, having me crippled from doing so. As I write all of this, it is with the clear knowledge that I am not done with the process, that tho some measure of acceptance has been achieved, I probably can expect more, unexpected and new emotions to claim space in my mental storehouse. But such is the way of life for me now, the way of a different living experience. I have recognized that it is totally up to me whether that experience is to be a struggle or not. All of this has been my solution to the struggle with moving on, it is serving it's purpose for me; that others may find some or all of it useful in their own journey is benignly, academic, we all know that in this matter one solution does not fit all. It has been a way for me to come to terms with all which has happened and to try an attain some acceptance in an attempt to move forward with a sense of purpose. In this matter of passing time, it is a reminder on the larger scale that it may all be about time; from that second we are born to this present moment , all of us begin dying...that we try to live in that intervening span is what makes up or lives, our 'living', and in the end, our memories, at least that's the way I've chosen to view it...it works for me.
So the matter of passing time and certain dates will have to be put in a safe place for me, as does this notion that I'm to be overly burdened with extra weight on those certain days...along with memories of DJ, our life together and the many things we experienced, marking the passage of time will have to have it's niche, that place where my visiting it allows for the acknowledging of it without so much of the pain. This is much easier to recognize and deal with now, much easier than back then...back in those hellish hours and days after November 8, 2011, 2:45 a.m. when paradoxically, time appeared stopped, yet seemed to blow right past me, all at once, right before my own eyes. A point in the time of my life that will forever have the second hand of my heart and mind fixed at that precise moment with such clarity that it often seems surreal; but I know it is not, it is quite real and that fixed moment appears to be quite permanent. This is how this matter of the passage of time and the various special dates are being handled by me; it can only apply to me and may not offer much to others; probably, that is as it should be. I think we each have to make our own decisions, come to our conclusions as far as these things are concerned, because after all, this is the most personal of events to have happened in each of our unique lives, it is only fitting that the solutions for each of us carry the same uniqueness. Finding out how to move forward in this different life remains the challenge for each of us, past time, past grief, past our own interfering ways...to arrive at that place where acceptance can be gained, and a lifestyle of less pain is the norm.
This is something I believe we have to brew and bottle for our own selves in our own time.